The Handbook provides an essential resource at the interface of Genomics, Health and Society, and forms a crucial research tool for both new students and established scholars across biomedicine and social sciences. Building from and extending the first Routledge Handbook of Genetics and Society, the book offers a comprehensive introduction to pivotal themes within the field, an overview of the current state of the art knowledge on genomics, science and society, and an outline of emerging areas of research. Key themes addressed include the way genomic based DNA technologies have become incorporated into diverse arenas of clinical practice and research whilst also extending beyond the clinic; the role of genomics in contemporary ‘bioeconomies’; how challenges in the governance of medical genomics can both reconfigure and stabilise regulatory processes and jurisdictional boundaries; how questions of diversity and justice are situated across different national and transnational terrains of genomic research; and how genomics informs – and is shaped by – developments in fields such as epigenetics, synthetic biology, stem cell, microbial and animal model research. Presenting cutting edge research from leading social science scholars, the Handbook provides a unique and important contribution to the field. It brings a rich and varied cross disciplinary social science perspective that engages with both the history and contemporary context of genomics and ‘post-genomics’, and considers the now global and transnational terrain in which these developments are unfolding.
The Routledge Handbook of Language and Science provides a state-of-the-art volume on the language of scientific processes and communications. This book offers comprehensive coverage of socio-cultural approaches to science, as well as analysing new theoretical developments and incorporating discussions about future directions within the field. Featuring original contributions from an international range of renowned scholars, as well as academics at the forefront of innovative research, this handbook: identifies common objects of inquiry across the areas of rhetoric, sociolinguistics, communication studies, science and technology studies, and public understanding of science; covers the four key themes of power, pedagogy, public engagement, and materiality in relation to the study of scientific language and its development; uses qualitative and quantitative approaches to demonstrate how humanities and social science scholars can go about studying science; details the meaning and purpose of socio-cultural approaches to science, including the impact of new media technologies; analyses the history of the field and how it positions itself in relation to other areas of study. Ushering the study of language and science toward a more interdisciplinary, diverse, communal and ecological future, The Routledge Handbook of Language and Science is an essential reference for anyone with an interest in this area.
We, Other Utopians is the first book to analyze the topics of genome editing/recombinant DNA on the basis of ethnographic research in the post-communist context. The book focuses on the topics of human DNA editing and genome repair on two levels. First, inspired by texts analyzing the concept of life and the body in general, it conceptually and analytically works with various approaches to engineered life and embodiments from the perspective of anthropology, sociology, and science and technology studies. Second, it presents an analysis of artificial life, and biotechnological embodiments on concrete technologies – genome editing, recombinant DNA, and biological computing. The book explores the theme of genome editing based on ethnographic research conducted at a biochemical laboratory in the Czech Republic. The fieldwork was carried out from 2017 to 2019, mainly in a lab focusing on DNA damages and genomic risk of complex diseases or genetic vulnerabilities like breast cancer, infertility, and ageing. Recombinant DNA is understood here as the exchange of DNA strands to produce and design new nucleotide sequence arrangements to heal or enhance human bodies and health in the future. The book analyzes various economies of hope, hype, expectations, politics, and poetics of false promises and better or worse predictions from the point of view of sociology, anthropology, and science and technology studies.
Medical Materialities investigates possible points of cross-fertilisation between medical anthropology and material culture studies, and considers the successes and limitations of both sub-disciplines as they attempt to understand places, practices, methods, and cultures of healing. The editors present and expand upon a definition of ‘medical materiality’, namely the social impact of the agency of often mundane, at times non-clinical, materials within contexts of health and illness, as caused by the properties and affordances of this material. The chapters address material culture in various clinical and biomedical contexts and in discussions that link the body and healing. The diverse ethnographic case studies provide valuable insight into the way cultures of medicine are understood and practised.
This Handbook offers an overview of the thriving and diverse field of anthropological studies of technology. It features 39 original chapters, each reviewing the state of the art of current research and enlivening the field of study through ethnographic analysis of human-technology interfaces, forms of social organisation, technological practices and/or systems of belief and meaning in different parts of the world. The Handbook is organised around some of the most important characteristics of anthropological studies of technology today: the diverse knowledge practices that technologies involve and on which they depend; the communities, collectives, and categories that emerge around technologies; anthropology’s contribution to proliferating debates on ethics, values, and morality in relation to technology; and infrastructures that highlight how all technologies are embedded in broader political economies and socio-historical processes that shape and often reinforce inequality and discrimination while also generating diversity. All chapters share a commitment to human experiences, embodiments, practices, and materialities in the daily lives of those people and institutions involved in the development, manufacturing, deployment, and/or use of particular technologies.
How are we supposed to handle these new tools that could end up changing our genetic material? The advancement of the new genetic technology has hurtled forward at breakneck speed. When the first genetically modified children, the twins Lulu and Nana, were born in China in 2018, it became clear that humanity was facing possibilities that we had, previously, only been able to imagine. With the pair of genetic scissors known as CRISPR, we could potentially choose the traits of our children and avoid ageing and disease. But with that ability comes a new set of risks, forcing us to face hard ethical and societal questions. Torill Kornfeldt has travelled all over the world to meet the people who are driving the research forward. She has visited fertility clinics in South Korea, oncologists in China who are experimenting on sick patients, and biohackers in the US who want to make the new technology available to everyone. In The Unnatural Selection of Our Species, she examines recent developments in gene editing and what might still be waiting around the corner. “A book filled with curiosity, but with a sober eye on the risks and dilemmas. Well written, knowledgeable, and engaging – exactly how really good popular science is supposed to be.” Gustav Källstrand, Nobel Centre
The anthropological demography of health, as a field of interdisciplinary population research, has grown from the 1990s, extending to a remarkable range of key human and policy issues, including: genetic disorders; nutrition; mental health; infant, child, and maternal morbidity; malaria; HIV/AIDS; disability and chronic diseases; new reproductive technologies; and population ageing. By observing group formation and change over time, tracking people's networks, and observing variance between what people say and do, anthropological demography goes beyond the characteristically top-down formal methodologies of most mainstream socio-economic demography and population health. This path-breaking volume charts and integrates the growing body of research that combines ethnography with quantitative models and methods in the field of population health. It offers a clear agenda based on important conceptual and methodological advances, and often working in close collaboration with medical and historical research. Approaches to population that are grounded in sustained ethnographic and historical research provide more than substantive knowledge of how cultural and social formations interact with health. They enable understanding of how local institutions and experience of vital events come to be translated into the demographic and health measures on which survey and clinical programmes rely. This, in turn, makes possible critical evaluation of the empirical adequacy of such translation, reflection on what happens when these models and measures become standardised evaluations of health statuses, and what this implies for governance. The combination of anthropological, demographic, historical, and biological research has gone beyond the initial demographic prioritisation of fertility regulation, to take on an expanded range of key health policy issues, and locate them in the context of the inequalities that so frequently give rise to major health differentials. The Anthropological Demography of Health offers a clear agenda for the application and extension of combined anthropological and demographic thinking in population health, and will provide a point of reference for the field.
A comprehensive collection of original essays by leading medical sociologists from around the world, fully updated to reflect contemporary research and global health issues The Wiley Blackwell Companion to Medical Sociology is an authoritative overview of the most recent research, major theoretical approaches, and central issues and debates within the field. Bringing together contributions from an international team of leading scholars, this wide-ranging volume summarizes significant new developments and discusses a broad range of globally-relevant topics. The Companion's twenty-eight chapters contain timely, theoretically-informed coverage of the coronavirus pandemic and emerging diseases, bioethics, healthcare delivery systems, health disparities associated with migration, social class, gender, and race. It also explores mental health, the family, religion, and many other real-world health concerns. The most up-to-date and comprehensive single-volume reference on the key concepts and contemporary issues in medical sociology, this book: Presents thematically-organized essays by authors who are recognized experts in their fields Features new chapters reflecting state-of-the-art research and contemporary issues relevant to global health Covers vital topics such as current bioethical debates and the global effort to cope with the coronavirus pandemic Discusses the important relationship between culture and health in a global context Provide fresh perspectives on the sociology of the body, biomedicalization, health lifestyle theory, doctor-patient relations, and social capital and health The Wiley Blackwell Companion to Medical Sociology is essential reading for advanced undergraduate and graduate students in medical sociology, health studies, and health care, as well as for academics, researchers, and practitioners wanting to keep pace with new developments in the field.
In Infertile Environments, Janelle Lamoreaux investigates how epigenetic research into the effects of toxic exposure conceptualizes and configures environments. Drawing on fieldwork in a Nanjing, China, toxicology lab that studies the influence of pesticides and other pollutants on male reproductive and developmental health, Lamoreaux shows how the lab’s everyday research practices bring national, hormonal, dietary, maternal, and laboratory environments into being. She situates the lab’s work within broader Chinese history as well as the contemporary cultural and political moment, in which declining fertility rates and reproductive governance and technology are growing concerns. She also points to how toxicology in China is a transnational endeavor tied to both local conditions and international research agendas and infrastructures, which highlights the myriad scales and scope of epigenetic environments. At a moment of growing concerns about toxins, endocrine-disrupting chemicals, and climate change, Lamoreaux demonstrates that epigenetic research’s proliferation of environments produces new kinds of toxic relations that impact multiple generations of humans.
This book is an ethnographic exploration of what it means to be human from a more-than-human perspective, the microbial perspective. It engages with the scientific study of the microbiome and the vast microbial biodiversity that surrounds and constitutes us. Microbes connect human bodies with the environment in which they live and have important implications for both human and environmental health. Scientists studying the microbiome are explorers of uncharted life and in this venture they are constrained by onto-epistemic working practices grounded in the reductionist paradigm of molecular biology. At the same time, however, they configure the microbiome ecosystem as an aspirational form of ecological co-habitation. The aim of the book is to critically explore the ethical, political and ontological implications of microbiome science in times of profound socio-technical and ecological transition and engage with them productively from an anthropological perspective. It suggests ways to revitalize current debates within medical anthropology, environmental anthropology, science and technology studies and anthropology at large, especially with regard to posthumanism, the ontological turn and critical data study.
This book offers a unique description of how phenomenology can help professionals from medical, environmental and social fields to explore notions such as interaffectivity, empathy, epoche, reduction, and intersubjective encounter. Written by a group of top scholars, it uniquely covers the relationship between phenomenology and bioethics, and focuses not only on medical cases, but also on the environment and emerging technologies. This variety of themes, whilst including techno-ethics, environmental ethics, animal ethics, and medical ethics, is conducive to appreciating broadly how phenomenology can improve our quality of our life. Despite its difficult themes, the book appeals to an audience of both academics and professionals who are willing to understand how to increase the quality of care in their professional field. Chapter 8 is available open access under a Creative Commons Attribution 4.0 International License via link.springer.com.
Under the Nazi regime a secret program of ‘euthanasia’ was undertaken against the sick and disabled. Known as the Krankenmorde (the murder of the sick) 300,000 people were killed. A further 400,000 were sterilised against their will. Many complicit doctors, nurses, soldiers and bureaucrats would then perpetrate the Holocaust. From eyewitness accounts, records and case files, The First into the Dark narrates a history of the victims, perpetrators, opponents to and witnesses of the Krankenmorde, and reveals deeper implications for contemporary society: moral values and ethical challenges in end of life decisions, reproduction and contemporary genetics, disability and human rights, and in remembrance and atonement for the past.
